Jordan Adams is the co-founder of The FTD Brothers, a campaign dedicated to raising awareness of dementia, accelerating research into a cure and supporting those affected.
Jordan's life changed forever when he discovered he carries the rare inherited MAPT gene mutation, giving him a 99.9% chance of developing early-onset Frontotemporal Dementia in his 40s. The disease has already claimed the lives of his mother, grandmother, aunt and 12 members of his Irish family. His younger brother, Cian, also carries the same mutation.
Rather than allowing his future to be defined by fear, Jordan has chosen to use his diagnosis as a catalyst for change. Together with Cian, he founded The FTD Brothers to raise awareness for dementia, particularly of young onset forms, campaign for greater understanding and to help fund research into treatments and, ultimately, a cure as well as support for those affected.
In 2026, Jordan undertook an extraordinary fundraising challenge that captured international attention. He completed the London Marathon carrying a 25kg fridge on his back before flying directly to Ireland, where he ran a further 32 marathons in 32 consecutive days, covering every county on the island of Ireland.
The challenge generated worldwide media coverage, inspired hundreds of thousands of supporters and attracted encouragement from HRH The Prince of Wales. To date, it has raised more than £2.3 million for dementia research and support.
Jordan has built a substantial online following (over 1 million across Instagram/ TikTok), using his platforms to educate, inspire and encourage conversations around all types of dementia, resilience and living life with purpose. Through documentaries, media appearances, fundraising challenges and public campaigns, he continues to shine a light on a disease that remains widely misunderstood.
His mission is simple: to ensure that no family faces dementia alone, and to help create a future where dementia no longer carries the devastating certainty that his own family has lived with for generations.