Vera Twomey's daughter Ava was diagnosed with Dravet Syndrome, a rare form of epilepsy that causes multiple seizures a day, the family's life was thrown into chaos. Where they hoped to find treatment and support in the medical system, they found only frustration. The only medication that would have any effect on Ava's condition is a form of medicinal cannabis that was unavailable in Ireland. 

Thus began the family's fight to alleviate their daughter's suffering and give her a chance at life. Faced with an intransigent system and political establishment, Vera's campaign eventually culminated in her decision to walk from Cork to Leinster House in Dublin in protest to ask health minister Simon Harris for help in person. The family were forced to move temporarily to the Netherlands in order to legally access the medication that would save Ava's life. Vera and Ava's story is a moving account about the lengths a parent will go to for their child's health and happiness.

Now a published author, her bestselling book "For Ava"  tells her remarkable story in full. Vera is a relucant activist and is living proof that all it takes is one person with a mission and a can-do attitude, to achieve great things.

To book Vera for your next event contact Speaker Solutions on 01 6190243 or email info@speakersolutions.ie.

Vera Twomey

Inspirational Speaker, Bestselling Author and Reluctant Activist

Vera Twomey is a mother of four who came to national and international prominence when she highlighted the need for immediate access to medical cannabis for her daughter Ava Barry.

Vera's journey has taken her to The House of Commons and European Parliment as well as The Dail and she is regularly invited to tell her inspirational story at conferences and events in Ireland and abroad.

Her determination struck a chord with the general public in Ireland and there was an outcry of support for this remarkable woman. Vera Twomey represents the absolute essence of a mother's love for her child.  The lengths that she went to to secure the only medication proven to help her daughter, inspired a nation. 

 

 

 

Vera Twomey's daughter Ava was diagnosed with Dravet Syndrome, a rare form of epilepsy that causes multiple seizures a day, the family's life was thrown into chaos. Where they hoped to find treatment and support in the medical system, they found only frustration. The only medication that would have any effect on Ava's condition is a form of medicinal cannabis that was unavailable in Ireland. 

Thus began the family's fight to alleviate their daughter's suffering and give her a chance at life. Faced with an intransigent system and political establishment, Vera's campaign eventually culminated in her decision to walk from Cork to Leinster House in Dublin in protest to ask health minister Simon Harris for help in person. The family were forced to move temporarily to the Netherlands in order to legally access the medication that would save Ava's life. Vera and Ava's story is a moving account about the lengths a parent will go to for their child's health and happiness.

Now a published author, her bestselling book "For Ava"  tells her remarkable story in full. Vera is a relucant activist and is living proof that all it takes is one person with a mission and a can-do attitude, to achieve great things.

To book Vera for your next event contact Speaker Solutions on 01 6190243 or email info@speakersolutions.ie.

Topic include:

Overcoming Adversity

Fight for what you believe in

Resilience

Not taking no for an answer

 

 

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