Vera Twomey's daughter Ava was diagnosed with Dravet Syndrome, a rare form of epilepsy that causes multiple seizures a day, the family's life was thrown into chaos. Where they hoped to find treatment and support in the medical system, they found only frustration. The only medication that would have any effect on Ava's condition is a form of medicinal cannabis that was unavailable in Ireland.
Thus began the family's fight to alleviate their daughter's suffering and give her a chance at life. Faced with an intransigent system and political establishment, Vera's campaign eventually culminated in her decision to walk from Cork to Leinster House in Dublin in protest to ask health minister Simon Harris for help in person. The family were forced to move temporarily to the Netherlands in order to legally access the medication that would save Ava's life. Vera and Ava's story is a moving account about the lengths a parent will go to for their child's health and happiness.
Now a published author, her bestselling book "For Ava" tells her remarkable story in full. Vera is a relucant activist and is living proof that all it takes is one person with a mission and a can-do attitude, to achieve great things.
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